Hayley Okines Died,Hayley Okines Progeria,Hayley Progeria Update,Progeria Disease

Hayley Okines who suffers from an extremely rare genetic condition called Hutchinson Gilford Progeria Syndrome, also known as HGPS or Progeria. At present there are 53 known cases of Progeria around the world and only 2 in the UK, which is where we live.


Progeria or Progeria Diseases is a progressive terminal condition which mimics many of the characteristics of the normal ageing process, but about 8 times faster in fact! A 10 year old progeria child will have the appearance of an octogenerian with symptoms including baldness, arthritis and heart problems...but with the mind of a 10 year old!

The average lifespan of children with Progeria is about 13 and at present there is no cure...but its close! Hayley was diagnosed with Progeria in 1999 , Never heard of it

What is Progeria Diseases??

Progeria, or Hutchinson Gilford Progeria syndrome, is an extremely rare, fatal genetic condition of childhood with striking features resembling premature aging. The word Progeria is derived from the Greek meaning “prematurely old”. Hutchinson Gilford Progeria accelerates the process of aging to about eight times the normal rate. Because of this accelerated aging, a child with Hutchinson Gilford Progeria that is ten years old will have similar respiratory, cardiovascular, and arthritic conditions of that of an eighty year old.

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